From Elizabeth
Parkinsons / DBS Podcast
I was recently asked if I would participate in a podcast about Parkinsons Disease and the DBS surgery I had. I was honored to be asked so I jumped at the opportunity.
The podcast is part of a series called “This is Your Brain with Dr. Phil Stieg“. It is about how the brain affects your health and life. Dr. Phil Stieg is Neurosurgeon-in-Chief of New York-Presbyterian/Weill Cornell Medical Center and founder and Chairman of the Weill Cornell “Medicine Brain and Spine Center.
The Parkinson's podcast is hosted by Dr. Phil Stieg and includes Dr. Michael Kaplitt, my neurosurgeon and myself. It is a 2 part series discussing Parkinsons and DBS surgery. We discuss how the symptoms of Parkinson's disease progress and can degrade your quality of life. In Part 2 we discussed my view of the Deep Brain Stimulation surgery I had in the Fall of 2019.
To listen to the podcasts click the links below.
Part 1 - Facing Parkinson's Disease
Part 2 - Fighting Parkinson's with DBS
My Story
You don't realize what you have until it's gone. This sentiment has never meant more to me as it did when I was diagnosed with Parkinson's disease. It comes on slowly. While you are walking you trip occasionally, you notice that small gestures are slower than they used to be and you're talking to people but you are not making facial expressions when you think you are. All of these things happened to me but I didn't think anything of them. I went to a neurologist and he explained to me what was going on. I had to accept that I have Parkinson's disease.
With Parkinson's disease you manage the symptoms. It is two steps forward and one step back every day. This is because there is no cure. Drive Away Parkinson's Inc. has been established to raise money to help find a cure.
Liz’s Blog - From Diagnosis to DBS
Living with Parkinson’s disease can sometimes be confusing and scary especially if you live on your own. I have created a blog to document my experiences from the time I was diagnosed with the disease through DBS Surgery and beyond.
Use the link below to access my blog.
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Outdoor Get Together Sept 20, 2020
We are having an Outdoor Get Together on Sept 20, 2020. There will be live music with Johnny Fish and the Fins. Check out the Event page for details.
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Since the company was founded in 2016 we have raised and donated $50,000 to the Michael J Fox Foundation for Parkinson's Research.
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